This is Aunt Christie. Katie asked me to let you all know what is going on. Emily has had a hard week. She was having trouble breathing and has been on oxygen for the past couple of days. Chest x-rays showed that her lungs were clear so it was determined that she might have a little bit of a respiratory infection. Last night her breathing became really difficult so they took her to the ICU to put her on special oxygen treatments. They then noticed that her pupils weren't dilating as they should so they took her to have a CT scan. The scan showed a bleed in her brain. Her ventricles are enlarged as well all of which is causing the breathing problems and other difficulties. I don't know what will be done. We are heading to Boston this afternoon to be with Emily. I will let you know more as soon as I have more information. Please continue to pray for Emily, Katie and Brian.
We had a hard today. Emily's MRI showed a new 2cm tumor in the posterior fossa and one of the nodules has increased in size. The good news is that her spine was clear and the new growths were localized to the posterior fossa, or the back of her brain. It's good that we had another MRI because had we gone to stem cell with this new disease, stem cell would not have been successful. We don't know what treatment we will be doing next, but the team knows time is critical and a new plan will be put together next week. Needless to say, I will be staying in Boston until we have a new plan in place. Even though today was a setback we still feel hopeful. The tumor is still localized and we have options. We also have the strongest, most courageous little girl and an army of supporters. We thank you all for the love and support and will let you know when we have plan C in place.